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| Issue Date | Title | Author(s) |
| 2021 | 2020 ESC Guidelines for the management of adult congenital heart disease : the task force for the management of adult congenital heart disease of the European Society of Cardiology (ESC) | Baumgartner, Helmut; De Backer, Julie; Babu-Narayan, Sonya V.; Budts, Werner; Chessa, Massimo; Diller, Gerhard-Paul; Iung, Bernard; Kluin, Jolanda; Lang, Irene M.; Meijboom, Folkert; Moons, Philip; Mulder, Barbara J. M.; Oechslin, Erwin; Roos-Hesselink, Jolien W.; Schwerzmann, Markus; Sondergaard, Lars; Zeppenfeld, Katja; Hammoudi, Naima; Grigoryan, Svetlana V.; Mair, Johannes; Imanov, Galib; Chesnov, Jouri; Bondue, Antoine; Nabil, Naser; Kaneva, Anna; Brida, Margarita; Hadjisavva;, Ourania; Rubackova-Popelova, Jana; Guldbrand Nielsen, Dorte; El Sayed, Maiy Hamdy; Ermel, Raili; Sinisalo, Juha; Thambo, Jean-Benoit; Bakhutashvili, Zviad; Walther, Claudia; Giannakoulas, George; Balint, Olga Hajnalka; Lockhart, Christopher J.; Nir, Amiram; Murrone, Adriano; Ahmeti, Artan; Lunegova, Olga; Rudzitis, Ainars; Saliba, Zakhia; Gumbiene, Lina; Wagner, Kerstin; Caruana, Maryanne; Bulatovic, Nebojsa; Amri, Rachida; Bouma, Berto J; Srbinovska-Kostovska, Elizabeta; Estensen, Mette-Elise; Tomkiewicz-Pajak, Lidia; Coman, Ioan Mircea; Moiseeva, Olga; Zavatta, Marco; Stojsic-Milosavljevic, Anastazija; Simkova, Iveta; Prokselj, Katja; Gallego, Pastora; Johansson, Bengt; Greutmann, Matthias; Boughzela, Essia; Sirenko, Yuriy; Coats, Louise; European Society of Cardiology (ESC) |
| 2015 | Assessment of patterns of patient-reported outcomes in adults with congenital heart disease — international study (APPROACH-IS) : rationale, design, and methods | Apers, Silke; Kovacs, Adrienne H.; Luyck, Koen; Alday, Luis; Berghammer, Malin; Budts, Werner; Callus, Edward; Caruana, Maryanne; Chidambarathanu, Shanthi; Cook, Stephen C.; Dellborg, Mikael; Enomoto, Junko; Eriksen, Katrine; Fernandes, Susan M.; Jackson, Jamie L.; Johansson, Bengt; Khairy, Paul; Kutty, Shelby; Menahems, Samuel; Rempel, Gwen; Slumanu, Maayke A.; Soufi, Alexandra; Thomet, Corina; Veldtman, Gruschen; Wang, Jou-Kou; White, Kamila; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and the International Society for Adult Congenital Heart International Study (APPROACH-IS) |
| 2021 | Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease : an international study | Casteigt, Benjamin; Samuel, Michelle; Laplante, Laurence; Shohoudi, Azadeh; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Brouillette, Judith; Moons, Philip; Khairy, Paul; APPROACH-IS consortium and ISACHD |
| 2019 | Differential impact of physical activity type on depression in adults with congenital heart disease : a multi-center international study | Mi Ko, Jong; White, Kamila S.; Kovacs, Adrienne H.; Tecson, Kristen M.; Apers, Silke; Luyckx, Koen; Thometh, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackiey, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; Callus, Edward; Kutty, Shelby; Moons, Philip; Cedars, Ari M.; APPROACH-IS consortium and ISACHD |
| 2019 | Education as important predictor for successful employment in adults with congenital heart disease worldwide | Sluman, Maayke A.; Apers, Silke; Sluiter, Judith K.; Nieuwenhuijsen, Karen; Moons, Philip; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Yang, Hsiao‐Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Mattsson, Eva; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Gosney, Kathy; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila S.; Callus, Edward; Kutty, Shelby; Bouma, Berto J.; Mulder, Barbara J. M.; APPROACH-IS Consortium and ISACHD |
| 2019 | Geographical variation and predictors of physical activity level in adults with congenital heart disease | Larsson, Lena; Johansson, Bengt; Sandberg, Camilla; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Rempel, Gwen; Menahem, Samuel; Caruana, Maryanne; Tomlin, Martha; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS Consortium |
| 2020 | Health behaviours reported by adults with congenital heart disease across 15 countries | Holbein, Christina E.; Peugh, James; Veldtman, Gruschen R.; Apers, Silke; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2020 | Healthcare system inputs and patient-reported outcomes : a study in adults with congenital heart defect from 15 countries | Van Bulck, Liesbet; Goossens, Eva; Luyckx, Koen; Apers, Silke; Oechslin, Erwin; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD |
| 2017 | Illness perceptions in adult congenital heart disease : a multi-center international study | Rassart, Jessica; Apers, Silke; Kovacs, Adrienne H.; Moons, Philip; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Rempel, Gwen R.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila S.; Callus, Edward; Kutty, Shelby; Luyckx, Koen; APPROACH-IS Consortium and ISACHD |
| 2020 | Implantable cardioverter-defibrillators and patient-reported outcomes in adults with congenital heart disease : an international study | Lévesque, Valérie; Laplante, Laurence; Shohoudi, Azadeh; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Brouillette, Judith; Casteigt, Benjamin; Moons, Philip; Khairy, Paul; APPROACH-IS Consortium and ISACHD |
| 2018 | A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation | Holbein, Christina E.; Fogleman, Nicholas D.; Hommel, Kevin; Apers, Silke; Rassart, Jessica; Moons, Philip; Luyckx, Koen; Sluman, Maayke A.; Enomoto, Junko; Johansson, Bengt; Yang, Hsiao‐Ling; Dellborg, Mikael; Subramanyan, Raghavan; Jackson, Jamie L.; Budts, Werner; Kovacs, Adrienne H.; Morrison, Stacey; Tomlin, Martha; Gosney, Kathy; Soufi, Alexandra; Eriksen, Katrine; Thomet, Corina; Berghammer, Malin; Alday, Luis; Callus, Edward; Fernandes, Susan M.; Caruana, Maryanne; Menahem, Samuel; Cook, Stephen C.; Rempel, Gwen R.; White, Kamila; Khairy, Paul; Kutty, Shelby; Veldtman, Gruschen; APPROACH-IS consortium and ISACHD |
| 2013 | Outcome of pregnancy in patients with structural or ischaemic heart disease : results of a registry of the European Society of Cardiology | Roos-Hesselink, Jolien W.; Ruys, Titia P. E.; Stein, Jorg I.; Thilen, Ulf; Webb, Gary D.; Niwa, Koichiro; Kaemmerer, Harald; Baumgartner, Helmut; Budts, Werner; Maggioni, Aldo P.; Tavazzi, Luigi; Taha, Nasser; Johnson, Mark R.; Hall, Roger; De Backer, J.; Morissens, M.; Gordon, E.; Walter, L.; Marelli, A.; Montesclaros, A. R.; Popelova, J.; Vavera, Z.; El Nagar, A.; Ebaid, H. H.; El Sayed Makled, W. A.; Sorour, K.; Meguid Mahdy, M. A.; Ashour, Z.; Elrakshy, Y.; Iung, B.; Iserin, L.; Ladouceur, M.; Maisuradze, D.; Mebus, S.; Schneider, K.T.M.; Kuschel, B.; Hellige, A.; Kempny, A.; Schmidt, R.; Wald, C.; Motz, R.; Berger, F.; Nagdyman, N.; Frogoudaki, A.; Goland, S.; Blatt, A.; Maina, A.; Bossotti, C.; Gollo, E.; Vasario, E.; Boccuzzi, G.; Todros, T.; Donvito, V.; Grosso Marra, W.; Romeo, C.; Crepaz, R.; Fesslova, V.; Festa, P.; Carmina, M. G.; Ikeda, T.; Matsuda, Y.; Gumbiene, L.; Cassar, A.; Caruana, Maryanne; Karamermer, Y.; Can, A.; Duvekot, J.; Cornette, J.; Pieper, E.; van Oppen, C.; De Groot, C.; Polak, P.; Estensen, M.; Lesniak-Sobelga, A.; Olszowska, M.; Podolec, P.; Wisniowska-Smialek, S.; de Sousa, L.; Guerra, N.; Petrescu, V.; Ravilevich Gaisin, I.; Shilina, L. V.; Sharashkina, N.; Tkacheva, O.; Jovovic, L.; Kozelj, M.; Pijuan Domenech, A.; Subirana, M. T.; Oliver, J. M.; Murga, N.; Schwerzmann, M.; Almahmeed, W.; Yusufali, A.; Alhatou, E.; Hussain, F.; Nihoyannopoulos, P.; Freeman, L.; Veldtman, G.; Kerr, J.; Tellett, L.; Botti, J.; Ting, J.; Davidson, W. R.; Gurvitz, M.; Otto, C.; Talluto, C.; Murphy, D.; Perlroth, M. G.; Chintala, K.; Gupta, P.; ROPAC Investigators |
| 2018 | Patient-reported outcomes in adults with congenital heart disease : inter-country variation, standard of living and healthcare system factors | Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Van Bulck, Liesbet; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2021 | Patient-reported outcomes in adults with congenital heart disease following hospitalization (from APPROACH-IS) | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2023 | Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Patient-reported outcomes of adults with congenital heart disease from eight European countries : scrutinising the association with healthcare system performance | Van Bulck, Liesbet; Luyckx, Koen; Goossens, Eva; Apers, Silke; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Sluman, Maayke A.; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Caruana, Maryanne; Soufi, Alexandra; Callus, Edward; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Perceived health mediates effects of physical activity on quality of life in patients with a Fontan circulation | Holbein, Christina E.; Veldtman, Gruschen R.; Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Apers, Silke; Chidambarathanu, Shanti; Soufi, Alexandra; Eriksen, Katrine; Jackson, Jamie L.; Enomoto, Junko; Fernandes, Susan M.; Johansson, Bengt; Alday, Luis; Dellborg, Mikael; Berghammer, Malin; Menahem, Samuel; Caruana, Maryanne; Kutty, Shelby; Mackie, Andrew S.; Thomet, Corina; Budts, Werner; White, Kamila; Sluman, Maayke A.; Callus, Edward; Cook, Stephen C.; Khairy, Paul; Cedars, Ari; APPROACH-IS Consortium and ISACHD |
| 2021 | Phenotypes of adults with congenital heart disease around the globe : a cluster analysis | Callus, Edward; Pagliuca, Silvana; Boveri, Sara; Ambrogi, Federico; Luyckx, Koen; Kovacs, Adrienne H.; Apers, Silke; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Kutty, Shelby; Moons, Philip; APPROACH-IS consortium and ISACHD |
| 2018 | Physical activity-related drivers of perceived health status in adults with congenital heart disease | Mi Ko, Jong; White, Kamila S.; Kovacs, Adrienne H.; Tecson, Kristen M.; Apers, Silke; Luyckx, Koen; Thometh, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; Callus, Edward; Kutty, Shelby; Gandhi, Amarendra; Moons, Philip; Cedars, Ari M.; APPROACH-IS consortium and ISACHD |
| 2021 | Physical functioning, mental health, and quality of life in different congenital heart defects : comparative analysis in 3538 patients from 15 countries | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Ombelet, Fouke; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
