| Issue Date | Title | Author(s) |
| 2015 | Assessment of patterns of patient-reported outcomes in adults with congenital heart disease — international study (APPROACH-IS) : rationale, design, and methods | Apers, Silke; Kovacs, Adrienne H.; Luyck, Koen; Alday, Luis; Berghammer, Malin; Budts, Werner; Callus, Edward; Caruana, Maryanne; Chidambarathanu, Shanthi; Cook, Stephen C.; Dellborg, Mikael; Enomoto, Junko; Eriksen, Katrine; Fernandes, Susan M.; Jackson, Jamie L.; Johansson, Bengt; Khairy, Paul; Kutty, Shelby; Menahems, Samuel; Rempel, Gwen; Slumanu, Maayke A.; Soufi, Alexandra; Thomet, Corina; Veldtman, Gruschen; Wang, Jou-Kou; White, Kamila; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and the International Society for Adult Congenital Heart International Study (APPROACH-IS) |
| 2020 | Health behaviours reported by adults with congenital heart disease across 15 countries | Holbein, Christina E.; Peugh, James; Veldtman, Gruschen R.; Apers, Silke; Luyckx, Koen; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2022 | Heart failure and patient-reported outcomes in adults with congenital heart disease from 15 countries | Lu, Chun-Wei; Wang, Jou-Kou; Yang, Hsiao-Ling; Kovacs, Adrienne H.; Luyckx, Koen; Ruperti-Repilado, Francisco Javier; Van De Bruaene, Alexander; Enomoto, Junko; Sluman, Maayke A.; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2018 | Patient-reported outcomes in adults with congenital heart disease : inter-country variation, standard of living and healthcare system factors | Moons, Philip; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Van Bulck, Liesbet; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2021 | Patient-reported outcomes in adults with congenital heart disease following hospitalization (from APPROACH-IS) | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2023 | Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Patient-reported outcomes of adults with congenital heart disease from eight European countries : scrutinising the association with healthcare system performance | Van Bulck, Liesbet; Luyckx, Koen; Goossens, Eva; Apers, Silke; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Sluman, Maayke A.; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Caruana, Maryanne; Soufi, Alexandra; Callus, Edward; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2021 | Physical functioning, mental health, and quality of life in different congenital heart defects : comparative analysis in 3538 patients from 15 countries | Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Lu, Chun-Wei; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Ombelet, Fouke; Apers, Silke; Kovacs, Adrienne H.; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
| 2019 | Prevalence and effects of cigarette smoking, cannabis consumption, and co-use in adults from 15 countries with congenital heart disease | Moons, Philip; Luyckx, Koen; Kovacs, Adrienne H.; Holbein, Christina E.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2017 | Red flags for Maltese adults with congenital heart disease : poorer dental care and less sports participation compared to other European patients — an APPROACH-IS substudy | Caruana, Maryanne; Apers, Silke; Kovacs, Adrienne H.; Luyckx, Koen; Thomet, Corina; Budts, Werner; Sluman, Maayke; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Soufi, Alexandra; Callus, Edward; Moons, Philip; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene |
| 2017 | Regional variation in quality of life in patients with a Fontan circulation : a multinational perspective | Fogleman, Nicholas D.; Apers, Silke; Moons, Philip; Morrison, Stacey; Wittekind, Samuel G.; Tomlin, Martha; Gosney, Kathy; Sluman, Maayke A.; Johansson, Bengt; Enomoto, Junko; Dellborg, Mikael; Lu, Chun-Wei; Subramanyan, Raghavan; Luyckx, Koen; Budts, Werner; Jackson, Jamie; Kovacs, Adrienne; Soufi, Alexandra; Eriksen, Katrine; Thomet, Corina; Berghammer, Malin; Callus, Edward; Fernandes, Susan M.; Caruana, Maryanne; Cook, Stephen C.; Mackie, Andrew S.; White, Kamila S.; Kutty, Shelby; Veldtman, Gruschen; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium |
| 2019 | Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe | Moons, Philip; Luyckx, Koen; Dezutter, Jessie; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Yang, Hsiao-Ling; Jackson, Jamie L.; Khairy, Paul; Subramanyan, Raghavan; Alday, Luis; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Apers, Silke; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Chircop, Daniel; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS Consortium and ISACHD |
| 2021 | Sense of coherence in adults with congenital heart disease in 15 countries : patient characteristics, cultural dimensions and quality of life | Moons, Philip; Apers, Silke; Kovacs, Adrienne H.; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A.; Wang, Jou-Kou; Jackson, Jamie L.; Khairy, Paul; Cook, Stephen C.; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S.; Menahem, Samuel; Caruana, Maryanne; Veldtman, Gruschen; Soufi, Alexandra; Fernandes, Susan M.; White, Kamila; Callus, Edward; Kutty, Shelby; Luyckx, Koen; Grech, Victor E.; Vella, Sheena; Mifsud, Anabel; Borg, Neville; Mercieca Balbi, Matthew; Vella Critien, Rachel; Farrugia, James; Gatt, Yanika; Muscat, Darlene; APPROACH-IS consortium and ISACHD |
