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DC Field | Value | Language |
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dc.contributor.author | Lu, Chun-Wei | - |
dc.contributor.author | Wang, Jou-Kou | - |
dc.contributor.author | Yang, Hsiao-Ling | - |
dc.contributor.author | Kovacs, Adrienne H. | - |
dc.contributor.author | Luyckx, Koen | - |
dc.contributor.author | Ruperti-Repilado, Francisco Javier | - |
dc.contributor.author | Van De Bruaene, Alexander | - |
dc.contributor.author | Enomoto, Junko | - |
dc.contributor.author | Sluman, Maayke A. | - |
dc.contributor.author | Jackson, Jamie L. | - |
dc.contributor.author | Khairy, Paul | - |
dc.contributor.author | Cook, Stephen C. | - |
dc.contributor.author | Chidambarathanu, Shanthi | - |
dc.contributor.author | Alday, Luis | - |
dc.contributor.author | Oechslin, Erwin | - |
dc.contributor.author | Eriksen, Katrine | - |
dc.contributor.author | Dellborg, Mikael | - |
dc.contributor.author | Berghammer, Malin | - |
dc.contributor.author | Johansson, Bengt | - |
dc.contributor.author | Mackie, Andrew S. | - |
dc.contributor.author | Menahem, Samuel | - |
dc.contributor.author | Caruana, Maryanne | - |
dc.contributor.author | Veldtman, Gruschen | - |
dc.contributor.author | Soufi, Alexandra | - |
dc.contributor.author | Fernandes, Susan M. | - |
dc.contributor.author | White, Kamila | - |
dc.contributor.author | Callus, Edward | - |
dc.contributor.author | Kutty, Shelby | - |
dc.contributor.author | Apers, Silke | - |
dc.contributor.author | Moons, Philip | - |
dc.contributor.author | Grech, Victor E. | - |
dc.contributor.author | Vella, Sheena | - |
dc.contributor.author | Mifsud, Anabel | - |
dc.contributor.author | Borg, Neville | - |
dc.contributor.author | Chircop, Daniel | - |
dc.contributor.author | Mercieca Balbi, Matthew | - |
dc.contributor.author | Vella Critien, Rachel | - |
dc.contributor.author | Farrugia, James | - |
dc.contributor.author | Gatt, Yanika | - |
dc.contributor.author | Muscat, Darlene | - |
dc.date.accessioned | 2024-04-17T15:32:05Z | - |
dc.date.available | 2024-04-17T15:32:05Z | - |
dc.date.issued | 2022 | - |
dc.identifier.citation | Lu, C. W., Wang, J. K., Yang, H. L., Kovacs, A. H., Luyckx, K., Ruperti‐Repilado, F. J.,...Moons, P. (2022). Heart failure and patient‐reported outcomes in adults with congenital heart disease from 15 countries. Journal of the American Heart Association, 11(9), e024993. | en_GB |
dc.identifier.uri | https://www.um.edu.mt/library/oar/handle/123456789/121026 | - |
dc.description.abstract | Background: Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient‐report outcomes in adults with congenital heart disease. Methods and Results: As part of the APPROACH‐IS (Assessment of Patterns of Patient‐Reported Outcomes in Adults with Congenital Heart disease—International Study), we collected data on HF status and patient‐reported outcomes in 3959 patients from 15 countries across 5 continents. Patient‐report outcomes were: perceived health status (12‐item Short Form Health Survey), quality of life (Linear Analogue Scale and Satisfaction with Life Scale), sense of coherence‐13, psychological distress (Hospital Anxiety and Depression Scale), and illness perception (Brief Illness Perception Questionnaire). In this sample, 137 (3.5%) had HF at the time of investigation, 298 (7.5%) had a history of HF, and 3524 (89.0%) had no current or past episode of HF. Patients with current or past HF were older and had a higher prevalence of complex congenital heart disease, arrhythmias, implantable cardioverter‐defibrillators, other clinical comorbidities, and mood disorders than those who never had HF. Patients with HF had worse physical functioning, mental functioning, quality of life, satisfaction with life, sense of coherence, depressive symptoms, and illness perception scores. Magnitudes of differences were large for physical functioning and illness perception and moderate for mental functioning, quality of life, and depressive symptoms. Conclusions: HF in adults with congenital heart disease is associated with poorer patient‐reported outcomes, with large effect sizes for physical functioning and illness perception. | en_GB |
dc.language.iso | en | en_GB |
dc.publisher | John Wiley & Sons, Inc. | en_GB |
dc.rights | info:eu-repo/semantics/openAccess | en_GB |
dc.subject | Heart failure | en_GB |
dc.subject | Outcome assessment (Medical care) -- Evaluation | en_GB |
dc.subject | Congenital heart disease -- Research -- International cooperation | en_GB |
dc.subject | Congenital heart disease -- Patients -- Psychological aspects | en_GB |
dc.subject | Quality of life -- Health aspects | en_GB |
dc.title | Heart failure and patient-reported outcomes in adults with congenital heart disease from 15 countries | en_GB |
dc.type | article | en_GB |
dc.rights.holder | The copyright of this work belongs to the author(s)/publisher. The rights of this work are as defined by the appropriate Copyright Legislation or as modified by any successive legislation. Users may access this work and can make use of the information contained in accordance with the Copyright Legislation provided that the author must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the prior permission of the copyright holder. | en_GB |
dc.contributor.corpauthor | APPROACH-IS consortium and ISACHD | en_GB |
dc.description.reviewed | peer-reviewed | en_GB |
dc.identifier.doi | 10.1161/JAHA.121.024993 | - |
dc.publication.title | Journal of the American Heart Association | en_GB |
Appears in Collections: | Scholarly Works - FacM&SMed |
Files in This Item:
File | Description | Size | Format | |
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Heart failure and patient reported outcomes in adults with congenital heart disease from 15 countries 2022.pdf | 1.6 MB | Adobe PDF | View/Open |
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