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DC Field | Value | Language |
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dc.contributor.author | Callus, Edward | - |
dc.contributor.author | Pagliuca, Silvana | - |
dc.contributor.author | Boveri, Sara | - |
dc.contributor.author | Ambrogi, Federico | - |
dc.contributor.author | Luyckx, Koen | - |
dc.contributor.author | Kovacs, Adrienne H. | - |
dc.contributor.author | Apers, Silke | - |
dc.contributor.author | Budts, Werner | - |
dc.contributor.author | Enomoto, Junko | - |
dc.contributor.author | Sluman, Maayke A. | - |
dc.contributor.author | Wang, Jou-Kou | - |
dc.contributor.author | Jackson, Jamie L. | - |
dc.contributor.author | Khairy, Paul | - |
dc.contributor.author | Cook, Stephen C. | - |
dc.contributor.author | Chidambarathanu, Shanthi | - |
dc.contributor.author | Alday, Luis | - |
dc.contributor.author | Eriksen, Katrine | - |
dc.contributor.author | Dellborg, Mikael | - |
dc.contributor.author | Berghammer, Malin | - |
dc.contributor.author | Johansson, Bengt | - |
dc.contributor.author | Mackie, Andrew S. | - |
dc.contributor.author | Menahem, Samuel | - |
dc.contributor.author | Caruana, Maryanne | - |
dc.contributor.author | Veldtman, Gruschen | - |
dc.contributor.author | Soufi, Alexandra | - |
dc.contributor.author | Fernandes, Susan M. | - |
dc.contributor.author | White, Kamila | - |
dc.contributor.author | Kutty, Shelby | - |
dc.contributor.author | Moons, Philip | - |
dc.date.accessioned | 2024-04-18T13:02:52Z | - |
dc.date.available | 2024-04-18T13:02:52Z | - |
dc.date.issued | 2021 | - |
dc.identifier.citation | Callus, E., Pagliuca, S., Boveri, S., Ambrogi, F., Luyckx, K., Kovacs, A. H.,...Moons, P. (2021). Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health and Quality of Life Outcomes, 19, 53. | en_GB |
dc.identifier.uri | https://www.um.edu.mt/library/oar/handle/123456789/121049 | - |
dc.description.abstract | Objective: To derive cluster analysis-based groupings for adults with congenital heart disease (ACHD) when it comes to perceived health, psychological functioning, health behaviours and quality of life (QoL). Methods: This study was part of a larger worldwide multicentre study called APPROACH-IS; a cross sectional study which recruited 4028 patients (2013–2015) from 15 participating countries. A hierarchical cluster analysis was performed using Ward’s method in order to group patients with similar psychological characteristics, which were defined by taking into consideration the scores of the following tests: Sense Of Coherence, Health Behavior Scale (physical exercise score), Hospital Anxiety Depression Scale, Illness Perception Questionnaire, Satisfaction with Life Scale and the Visual Analogue Scale scores of the EQ-5D perceived health scale and a linear analogue scale (0–100) measuring QoL. Results: 3768 patients with complete data were divided into 3 clusters. The first and second clusters represented 89.6% of patients in the analysis who reported a good health perception, QoL, psychological functioning and the greatest amount of exercise. Patients in the third cluster reported substantially lower scores in all PROs. This cluster was characterised by a significantly higher proportion of females, a higher average age the lowest education level, more complex forms of congenital heart disease and more medical comorbidities. Conclusions: This study suggests that certain demographic and clinical characteristics may be linked to less favourable health perception, quality of life, psychological functioning, and health behaviours in ACHD. This information may be used to improve psychosocial screening and the timely provision of psychosocial care. | en_GB |
dc.language.iso | en | en_GB |
dc.publisher | BioMed Central Ltd. | en_GB |
dc.rights | info:eu-repo/semantics/openAccess | en_GB |
dc.subject | Congenital heart disease -- Patients -- Attitudes | en_GB |
dc.subject | Cluster analysis | en_GB |
dc.subject | Congenital heart disease -- Patients -- Psychological aspects | en_GB |
dc.subject | Quality of life -- Health aspects | en_GB |
dc.subject | Congenital heart disease -- Research -- International cooperation | en_GB |
dc.title | Phenotypes of adults with congenital heart disease around the globe : a cluster analysis | en_GB |
dc.type | article | en_GB |
dc.rights.holder | The copyright of this work belongs to the author(s)/publisher. The rights of this work are as defined by the appropriate Copyright Legislation or as modified by any successive legislation. Users may access this work and can make use of the information contained in accordance with the Copyright Legislation provided that the author must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the prior permission of the copyright holder. | en_GB |
dc.contributor.corpauthor | APPROACH-IS consortium and ISACHD | en_GB |
dc.description.reviewed | peer-reviewed | en_GB |
dc.identifier.doi | 10.1186/s12955-021-01696-x | - |
dc.publication.title | Health and Quality of Life Outcomes | en_GB |
Appears in Collections: | Scholarly Works - FacM&SMed |
Files in This Item:
File | Description | Size | Format | |
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Phenotypes of adults with congenital heart disease around the globe a cluster analysis 2021.pdf | 1.49 MB | Adobe PDF | View/Open |
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