Please use this identifier to cite or link to this item:
https://www.um.edu.mt/library/oar/handle/123456789/26491
Full metadata record
DC Field | Value | Language |
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dc.date.accessioned | 2018-02-07T13:22:42Z | - |
dc.date.available | 2018-02-07T13:22:42Z | - |
dc.date.issued | 2002 | - |
dc.identifier.citation | Cuschieri, A. (2002). Confidentiality, privacy and genetic testing. Bioethical issues at the beginning and end of life, Malta. 31-39 | en_GB |
dc.identifier.isbn | 9990999333 | - |
dc.identifier.uri | https://www.um.edu.mt/library/oar//handle/123456789/26491 | - |
dc.description.abstract | Many people are willing to have genetic tests to provide information about their health status, although they might not fully understand the profound implications of the test results until these are explained to them. The people who want to know are not only the individuals affected by a disease condition, but also their relatives their sons and daughters, the fiancees of engaged offspring, uncles, aunts and cousins and even totally extraneous persons or bodies, such as insurance companies and employers. Depending, of course, on the circumstances of particular cases such individuals may claim that they have a legitimate right to information that directly or indirectly relates to them. The ethical problems regarding confidentiality and privacy are to decide whom to include within the limits of confidentiality and under what circumstances they to be included. The relatives of an individual who tested positive for a genetic condition not only claim that they have a right to know of any results that could affect them but they themselves become entitled to their own privacy and to the confidentiality of their own test results. | en_GB |
dc.language.iso | en | en_GB |
dc.publisher | Bioethics Consultative Committee | en_GB |
dc.rights | info:eu-repo/semantics/openAccess | en_GB |
dc.subject | Bioethics -- Malta -- Congresses | en_GB |
dc.subject | Genetic screening -- Moral and ethical aspects -- Malta | en_GB |
dc.subject | Patients -- Legal status, laws, etc. | en_GB |
dc.subject | Privacy, Right of | en_GB |
dc.subject | Medical records -- Moral and ethical aspects | en_GB |
dc.subject | Genetic counselors | en_GB |
dc.subject | Genetic disorders | en_GB |
dc.title | Confidentiality, privacy and genetic testing | en_GB |
dc.type | conferenceObject | en_GB |
dc.rights.holder | The copyright of this work belongs to the author(s)/publisher. The rights of this work are as defined by the appropriate Copyright Legislation or as modified by any successive legislation. Users may access this work and can make use of the information contained in accordance with the Copyright Legislation provided that the author must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the prior permission of the copyright holder. | en_GB |
dc.bibliographicCitation.conferencename | Bioethical issues at the beginning and end of life | en_GB |
dc.bibliographicCitation.conferenceplace | Malta : 10/2001 | en_GB |
dc.description.reviewed | N/A | en_GB |
dc.contributor.creator | Cuschieri, Alfred | - |
Appears in Collections: | Bioethical issues at the beginning and end of life |
Files in This Item:
File | Description | Size | Format | |
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Confidentiality, Privacy and Genetic.pdf | 384.11 kB | Adobe PDF | View/Open |
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