Young people's retrospective narratives as siblings of children with cancer

Abstract

This study researched and represented the retrospective narratives of siblings of children who went through and survived paediatric cancer. In this narrative qualitative study, semi-structured audio-recorded interviews were conducted with a purposive sample of six adult siblings. The siblings’ narratives were analysed using Narrative Thematic Analysis. Quirkos, a computer-assisted qualitative data analysis software (CAQDAS) was used to analyse the narratives. Emergent themes which were later examined included the emotional journey and the level of the siblings’ involvement during the illness trajectory, as well as the changes which were experienced in the family dynamics when their brother or sister was first diagnosed with paediatric cancer. The study’s epistemological stance was informed by narrative inquiry and social constructionism. The findings indicated that siblings experienced psychological and physical upheaval following the cancer diagnosis. This was influenced by various factors including the level of family support, as well as social and professional support including the lack of such support. At the same time, participants outlined how they also experienced some positive effects. Being a sibling to a child who went through and survived paediatric cancer altered their view of life and increased their appreciation of family members. Various avenues for future research, training and practice emerged from the participants’ stories. These include training for professionals who work with families of children with cancer, in particular to increase awareness of the siblings’ needs during counselling practice. Future research in this field should also involve the siblings of brothers or sisters who did not survive.