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DC Field | Value | Language |
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dc.contributor.author | Holub, Petr | - |
dc.contributor.author | Kohlmayer, Florian | - |
dc.contributor.author | Prasser, Fabian | - |
dc.contributor.author | Th. Mayrhofer, Michaela | - |
dc.contributor.author | Schlunder, Irene | - |
dc.contributor.author | Martin, Gillian M. | - |
dc.contributor.author | Casati, Sara | - |
dc.contributor.author | Koumakis, Lefteris | - |
dc.contributor.author | Wutte, Andrea | - |
dc.contributor.author | Kozera, Łukasz | - |
dc.contributor.author | Strapagiel, Dominik | - |
dc.contributor.author | Gabriele, Anton | - |
dc.contributor.author | Zanetti, Gianluigi | - |
dc.contributor.author | Sezerman, Osman Ugur | - |
dc.contributor.author | Mendy, Maimuna | - |
dc.contributor.author | Valik, Dalibor | - |
dc.contributor.author | Lavitrano, Marialuisa | - |
dc.contributor.author | Dagher, Georges | - |
dc.contributor.author | Zatloukal, Kurt | - |
dc.contributor.author | Ommen, GertJan B. van | - |
dc.contributor.author | Litton, Jan-Eric | - |
dc.date.accessioned | 2020-01-31T08:54:44Z | - |
dc.date.available | 2020-01-31T08:54:44Z | - |
dc.date.issued | 2018 | - |
dc.identifier.citation | Holub, P., Kohlmayer, F., Prasser, F., Th. Mayrhofer, M., Schlunder, I., Martin, G. M., … Litton, J. E. (2018). Enhancing reuse of data and biological material in medical research : from FAIR to FAIR-Health. Biopreservation and Biobanking, 16(2), 97-105. | en_GB |
dc.identifier.uri | https://www.um.edu.mt/library/oar/handle/123456789/51120 | - |
dc.description.abstract | The known challenge of underutilization of data and biological material from biorepositories as potential resources formedical research has been the focus of discussion for over a decade. Recently developed guidelines for improved data availability and reusability—entitled FAIR Principles (Findability, Accessibility, Interoperability, and Reusability)—are likely to address only parts of the problem. In this article,we argue that biologicalmaterial and data should be viewed as a unified resource. This approach would facilitate access to complete provenance information, which is a prerequisite for reproducibility and meaningful integration of the data. A unified view also allows for optimization of long-term storage strategies, as demonstrated in the case of biobanks.Wepropose an extension of the FAIR Principles to include the following additional components: (1) quality aspects related to research reproducibility and meaningful reuse of the data, (2) incentives to stimulate effective enrichment of data sets and biological material collections and its reuse on all levels, and (3) privacy-respecting approaches for working with the human material and data. These FAIR-Health principles should then be applied to both the biological material and data. We also propose the development of common guidelines for cloud architectures, due to the unprecedented growth of volume and breadth of medical data generation, as well as the associated need to process the data efficiently. | en_GB |
dc.language.iso | en | en_GB |
dc.publisher | Mary Ann Liebert, Inc. Publishers | en_GB |
dc.rights | info:eu-repo/semantics/openAccess | en_GB |
dc.subject | Data protection | en_GB |
dc.subject | Biobanks -- Management | en_GB |
dc.subject | Information storage and retrieval systems | en_GB |
dc.subject | Freedom of information | en_GB |
dc.subject | Privacy | en_GB |
dc.title | Enhancing reuse of data and biological material in medical research : from FAIR to FAIR-Health | en_GB |
dc.type | article | en_GB |
dc.rights.holder | The copyright of this work belongs to the author(s)/publisher. The rights of this work are as defined by the appropriate Copyright Legislation or as modified by any successive legislation. Users may access this work and can make use of the information contained in accordance with the Copyright Legislation provided that the author must be properly acknowledged. Further distribution or reproduction in any format is prohibited without the prior permission of the copyright holder. | en_GB |
dc.description.reviewed | peer-reviewed | en_GB |
dc.identifier.doi | 10.1089/bio.2017.0110 | - |
dc.publication.title | Biopreservation and Biobanking | en_GB |
Appears in Collections: | Scholarly Works - FacArtSoc |
Files in This Item:
File | Description | Size | Format | |
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Enhancing_reuse_of_data_and_biological_material_in_medical_research_from_FAIR_to_FAIR-Health_2018.pdf | 4.43 MB | Adobe PDF | View/Open |
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