Families' views and experiences of travelling abroad with children or adolescents with autism spectrum disorder

Abstract

The aim of this research study is to explore parents’ views of travelling abroad with their children or adolescents who are on the autistic spectrum. The study also sought to explore parents’ emotions and any psychological distress which may be experienced when venturing out to new countries with their autistic children. The study also aims to establish the potential role of occupational therapy in this sector, including the possibilities of interventions and assistance in planning that can be carried out to ensure a pleasant experience with minimal barriers. The study’s findings were based on 39 semi-structured questionnaires and 3 semi-structured interviews. The participants for this study consisted of parents who were members of the Autism Parents Association who had children or adolescents of ages 4-18 with autism spectrum disorder. These participants were selected by convenience sampling. The data collected was analysed using thematic analysis and 4 interrelated themes were identified: sensory processing issues, stress experienced by parents, the availability of autism-friendly facilities, and disturbance of routine. The data responses collected from closed-ended questions from the questionnaires were illustrated through the use of charts. Findings showed that travelling with autistic children is subjective and is mainly dependent on the severity of the condition, the type of trip, preparation, the availability of autism-friendly facilities and assistance from staff. It was found that the majority of parents have encountered barriers which negatively impacted their travel experience. Although a number of parents claimed that travelling with autism is an overall positive and rewarding experience, findings revealed that most parents feel immensely stressed, frustrated and agitated prior and during the holiday. The role of OT in this sector is strongly considered as helpful by participants as this could assist families with a smoother travel voyage and greater preparations.