In an official launch event that took place within the Council Room at the University of Malta’s Main Administration Building on Thursday 22 June 2023, DWARNA and studjuDWARNA were inaugurated. This marked the start of a unique research project that holds national importance, as it encourages the general public to participate in contributing to the research involving the Maltese genome. All of this will help facilitates our understanding to genetic causes and potential treatments for diseases in a local context.
Genomics has the potential to revolutionise healthcare delivery. Through studying the genes in our DNA, their function and influence on our body, genomic approaches are essential to enable better diagnostics and more targeted management of a wide range of diseases: from cancer to rare diseases to common conditions such as type 2 diabetes and heart disease.
DWARNA is an online interactive platform which facilitates research into the genetic causes and potential treatments for diseases. It aims to enhance active public participation in this kind of research in Malta where scientists make use of the biobank at the University of Malta. This biobank is where the samples and data are stored and made available under very strict governance rules and only to research projects that have full ethical approval.
It hosts a collection of short videos explaining what biobanks are, and how important they are to researchers, and also explains what participating (by giving a sample to be stored in the bank) implies. It offers the participant the possibility of remaining in control of how their sample is used, by being able to update or withdraw their consent online at any time and empowers participants by making the biobank governance procedures clear and transparent.
In a comment given to Newspoint, the Rector said, “It is an absolute pleasure being part of another leap in the right direction where the community at large is placed at the focus of our research.” He continued, “The DWARNA biobank will serve to understand better our biological identity and will definitely set the foundation work necessary for future research to be conducted by generations to come.”, whilst also looking forward to seeing more updates with regards to this project.
Present for the event were Prof. Richard Muscat, Prof. Nikolai Paul Pace, Prof. Gillian Martin, Mr Pierre Etienne Cizeron (Epic), and the Honourable Minister for Education, Sport, Youth, Research and Innovation, Dr Clifton Grima, who all joined the University Rector, Prof. Alfred J. Vella for the presentation pertaining to this project.
Speaking on behalf of local telecommunications operator, Epic, Mr Cizeron expressed that, “Epic Malta is proudly supporting this forward-thinking research project, which is aligned with our vision of connecting Malta to the future. By empowering the public to actively contribute to genetic research, we continue to empower innovation for a healthier and more advanced future for Malta.”
Meanwhile, Hon. Minister Grima stated that, "By merging Malta's colourful history with cutting-edge blockchain technology, the DWARNA project embodies our commitment to pioneering research that not only adds to our knowledge base but tangibly improves the quality of life for our community.” He continued, “I look forward to witnessing the impact of this work, just as we've seen with the inspiring efforts of our school children in waste management. My sincere thanks to all those participating - this endeavour is a testament to our collective strength.”
Visit DWARNA website to learn more.
